CTCDD: CTCDD Meeting 1-12-16

CTCDD Meeting 1-12-16


CT Council on Developmental Disabilities


January 12, 2016

Temple Beth El, West Hartford

10:00 AM to 2:20 PM


The 199th meeting of the CT Council on Developmental Disabilities was held on Tuesday, January 12, 2016 from 10:00 AM to 2:20 PM at Temple Beth El in West Hartford. 

Presiding:  Shelagh McClure, Chair; Anthony Orriola, Vice Chair

Recorder of Minutes:  Donna Devin

Members Present:  Chris Blake, April Burke, Michelle Chase, John Curtin, Michelle Duprey, Ann Gionet, Jacqueline Jamison, Michelle Johnson, Alicia Kucharczyk,        Joyce Lewis, Shelagh McClure, Margaret McDermott, Megan OíNeill, Antonio Orriola, Patricia Richardson, James Rosen, Brenda Stenglein, Ada Suarez, Kathy Wolkner

Members Absent:  Robin Wood

Staff:  Molly Cole, Cathy Adamczyk

Meeting Assistants:  Ellen Mathis, Peggy Johnson

Guest:   Frances, who is seeking information to assist her in starting her own Clubhouse.

1. Call to Order:  Shelagh McClure called the meeting to order at 10:00 AM. 


2. Approval of Agenda: Shelagh noted that the guests from SILC would not be able to attend.  She stated that the meeting would follow the order on the agenda, but there would not be a presentation from SILC.  Noting this, April Burke motioned to approve the agenda. Ada Suarez seconded the motion. The agenda was approved unanimously.


3. Approval of Minutes of 11/10/15:  April Burke motioned to approve the minutes. Meg McDermott seconded the motion. The minutes were approved.

Abstained:  John Curtain.


4. Introduction of Guest from the Center for Excellence in Developmental Disabilities, University of Connecticut Health Center:   Dr. Christine Sullivan has resigned from the Council and her position as Assistant Professor and Director of Education and Training at the UCEDD. Dr. Gerri A. Hanna, Assistant Director and Administrative Manager at the UCEDD, will be standing in for her until someone is hired to take Dr. Sullivanís position there.


5. Update on Key Issues and the Critical Need for Collaboration:  Shelagh McClure opened the discussion and spoke about collaboration. The Council has collaborated and worked together with other organizations and disability advocates on numerous occasions to advance serious issues, the most critical one being the 2020 Campaign to close the state operated institutions.

      She stressed how if the 2020 Campaign is successful, it would really be an important and long overdue completion of a long journey in the state to fight to end segregated institutions; and to settle once and for all, that people with disabilities have the right, like all citizens to live as contributing members of our communities.

      Many collaborating organizations, including the ARC Ct, The DD Network,  SILC and the Cross Disability Alliance are part of the 2020 Campaign. Shelagh stated, ďEach organization alone is strong, but together, our unified voice is even stronger and makes us, as a group, really hard to ignore on these issues.Ē Because of this shared work towards a common goal, more progress has been made in the past 14 months than the Council could have imagined.

      Recent press releases are evidence to the Council that they have ample work to do on educating the public, press, and the Legislature on many issues that are of vital importance to them. It spoke to the Councilís high level of organization that they were able to send out a response to the misstatements as quickly as they did in an attempt to repair some of the damage.


6. Purpose of Joint Meeting with the State Independent Living Council:  Due to illness, the joint meeting with members from the State Independent Living Council has been postponed. Molly Cole suggested inviting them to the Council retreat on Tuesday, April 5, 2016.

      Molly Cole reviewed the role of the State Independent Living Centers in CT. Connecticut has 5 state owned centers that are primarily staffed by people with disabilities and some parents. With minimal financial resources, they provide a fair amount of activities. Areas their work focuses on include transition for youth, nursing home transition, Medicaid and health access, the educational system, assistive technology, employment domains, and local policy issues in their various regions.

      The State Independent Living Council is comprised of representatives from the 5 centers and other individuals that direct the work of centers. The Council has a long history of collaboration with the SILC. They are part of the 2020 Campaign, a strong ally in implementing the Cross Disability Lifespan Alliance, and participate with the Council in the Candidatesí Forums. For years they used to help with teaching the Partners in Policymaking training program, and now recruit new members for it.

      Since the summer deadlines for submission of both the Councilís and the SILCís five year plans are only a month apart, it made sense discuss shared priorities and where some of their goals may overlap. The hope is that both councils could pool their collective resources together, so each group isnít funding a little money for two separate initiatives trying to reach the same objective.

      Molly Cole stated details on the dollars leveraged by the Council have to be disclosed in her annual report to the National Association of Councils on Developmental Disabilities. The report has to show what other dollars were added to the Council dollars to fund a particular initiative. It is especially effective when it reveals the OPA, UCEDD, and the SILC contributed money to a shared initiative of the Council. The NACDD wants to see how the Council is working with other entities in the state and how they are making system change happen through their collective work with all of the people whose mission is very similar.

      It was suggested by Molly that the SILC could be invited to the Councilís retreat. She directed the Council to think about how they might want to collaborate with SILC in the future as part of the Councilís larger goals in the state.

      There was a debate on moving the Council retreat to City Hall in New Haven. The Council discussed moving the retreat date to April 5th, instead of April 12th, because of a conflict with scheduling. Michelle Duprey emphasized that City Hall has all the amenities the Council will need, plus a big parking garage is attached to the building. The day-long event would be catered.

      April Burke motioned to have the Council retreat on Tuesday, April 5, 2016 held at City Hall in New Haven. John Curtin seconded the motion. The change in date and location was approved unanimously.

      The Council will revisit the location of the May 10th meeting in March. 


7. Report and Recommendations from Proposal Review:  Governorís Prevention Partnership and Transportation Initiative 

Ann Gionet reviewed recommendations from the Proposal Review Committee. First, they recommended approving the third and final year of funding of grant money for the Governorís Prevention Partnership.


Regarding the On Demand Transportation proposal, the Committee decided that a follow up meeting needed to be held with the Kennedy Center before determining the next step in funding their On Demand Transportation pilot. The Committee is looking for a detailed plan from the center rather than a review of their study and what needs to be accomplished. Molly Cole and Alicia Kucharczyk will visit the Kennedy Center next week to further discuss the initiative. They are willing to work with the center to revise and refine the plan.


The PRC also had a conversation about implementing a competitive application process for grants offered by the Council, to allow for flexibility in negotiating the amount of the grants. Secondly, they would like to see protocol put in place to address indirect costs, such as rent for office space, furniture, utilities, phone,  wi-fi connection, etc. These are necessary costs and critical for the success of any business venture.

Michelle Johnson motioned to approve the Proposal Review Committeeís recommendation to consent to the third and final year of funding of grant money for the Governorís Prevention Partnership. Michelle Chase seconded the motion. The recommendation was approved unanimously.

Following a quite lively and lengthy discussion among the council members, Meg McDermott motioned to approve the Proposal Review Committeeís recommendation to not move forward with the funding for the Kennedy Center until further clarification is obtained from them on their plan for an On Demand Transportation pilot. A deadline of forty-five (45) days was given for the center to provide more details on the pilot. Michelle Chase seconded the motion. The recommendation was approved unanimously.


8. Executive Directorís Report:  Molly Cole reported on funding and the budget of the Council. Everything is on track and the staff continues to look for opportunities to save money and cut back on costs whenever and possible.

9. Review and Discussion of 2020 Documents and Next Steps:  The recommendations submitted by the DDS on the future of Southbury Training Center are expected to be posted on their website in the immediate future. Shelagh McClure spoke about her op-ed and the letter to the DDS Commissioner she wrote with Leslie Simoes from the Arc CT that offers some practical suggestions in regards to the institution.

      Council members voiced their opinions that it is vital to the advancement of the Councilís goal to close Southbury that the public has access to accurate and reliable information pertaining to the issue. To that end, Chris Blake emphasized the need for more media exposure. Piggybacking on this, Michelle Duprey commented that the media should give more quality time to disability concerns, beyond a time allotment lasting a mere few minutes.


10. Review, Discussion and Approval of Five Year Plan Goals and Objectives:  Molly Cole revised the Councilís goals to be more measurable and developed some new objectives. The finished plan will be about 60 pages. She reminded the Council that any initiatives the council funds must relate to a goal in the five year plan.

      The Council is required to have an objective that focuses on a targeted disparity group that is specifically impacted within the disability community. They were asked to come up with a targeted population and some ideas for an activity, and be ready to discuss them at a future council meeting. Molly proposed focusing on Parents with Cognitive Limitations as the targeted disparity group.


11. Adjournment of Meeting:  Ada Suarez motioned for adjournment. John Curtain seconded the motion.  The meeting adjourned at 2:20 PM. The next Council meeting will be held on Tuesday, March 8th at Temple Beth El in West Hartford. It is the Public Forum.

Content Last Modified on 3/14/2016 1:07:34 PM