CTCDD: PI&E Meeting 3-13-12

PI&E Meeting 3-13-12



CT Council on Developmental Disabilities

Advocacy, Public Information and Education Committee

March 13, 2012

Conference Call Meeting

Members in Attendance:  Dwayne Paul, Chair; Monica Smyth; John Curtin; Kathy Wolkner;  Alicia Kucharczyk; Jacqueline Jamison; Brenda Stenglein

Absent Members: David King (testifying at the LOB); Zuleika Martinez

Guest:  Jennifer Throwe, Health Care Task Force

Staff Present:  Cathy Adamczyk

A quorum was established, and Mr. Paul called the meeting to order at 5:06 PM

1.  Motion to approve the agenda:  A motion was made to approve the agenda by Mr. Curtin. Ms. Lortie seconded the motion.  The motion carried unanimously, with Ms. Wolkner and Ms. Jamison abstaining. 


2.  Approval of the minutes from 2/28/2012:   The Chairman, Mr. Paul, gave the Committee time to review the minutes from February 28, 2012.  A motion was made by Ms. Lortie to accept the minutes.  The motion was seconded by Mr. Curtin.  The motion carried unanimously, with Ms. Wolkner and Ms. Jamison abstaining.


3.  Discussion:  Since the APIE decided to work with the Health Task Force at our last meeting, Ms. Throwe from the Health Task Force joined our conference call.  She was very glad APIE was going to assist them, since their group consists of 3 members and one staff person.  Their initiative is a spin-off on what Ms. Langton, staff to the Health Care task force, started by going to first-responder groups, giving advice on how to handle emergency situations where people with disabilities are involved.  Ms. Throwe talked about creating a video that would be shared with municipality leaders, consumers, and first responders.  This video would contain different chapters to respond to the different information needed for the various target groups.  The video would be eight hours long.  It would have closed captioning, and could be put up on our website.  The Health Care Task Force noted the need to develop curriculum, and realize there may be many chapters added as the needs arise.  Right now they are waiting for existing trainers to get back to them with input and cost information.  The group wants to promote a registry for each town.  Some towns already have a registry.  The Task Force needs to find out which municipalities already have registries, and which ones need to create them.  Those municipalities already contacted are receptive to further education on emergency preparedness.  The goal is to educate not just the municipality leaders, but the average person so everyone will know what to do in case of an emergency. Attention has to be paid to many situations.  Some scenarios discussed included issues of how much space is needed in a shelter for a wheelchair and what to do if a child with autism is injured and needs assistance.  The 8 hour video alone would cost $24,000 to create.

The brochure would be created as an extension of the video.  The written training manuals would cost about $406 per manual for 30 participants in each of three towns, which comes to $36,540.  There would also have to be a webmaster to put this information on the website for approximately an additional $2,000.  Discussion about doing this in-house was dismissed, since the work group consists of only 3 people.  An RFP is the recommended action.

The task force will target 3 very different communities (rural, suburb and urban) as pilot areas.  The task force would like to look at best practice on the one hand, and at the other extreme, a rural town that thinks they do not have the capacity to create a registry and implement emergency preparedness planning and training.

The Health Care Task Force is waiting to hear from those who have already been trained for estimates on how much it would cost to provide training, and set up a registry consisting of the needs of as many local townspeople as possible, with special attention to those who have disabilities.  Once these estimates are in, we can then proceed with putting an RFP forward.

Jennifer sees the support from the APIE Committee as follows:

1.     Help with the development of the brochure/pamphlet for first responders, municipal leadership (mayors, first selectmen) and individuals with disabilities and their loved ones

2.     Help create the content of the video

3.     Oversee the training materials as Council leaders

It was mentioned that all materials must be in understandable language, accountability and data collection must be embedded in all aspects of the project and that someone should take a look at what other Councils have developed in other states as well as what FEMA, BESB, the Red Cross and other agencies/organizations have done and try to tap into their ideas.  This should all be addressed in the RFP that is sent out.

When trying to identify work already being done in the community on emergency preparedness, it was pointed out that Sara Locke from ASRC (Autism Spectrum Resource Center) has been doing emergency preparedness specific to autism for many years.

The state is divided into five regions.  Mary-Ann started to get cost estimates, but nothing has been completed. 

Monica was identified as a member of the Proposal Review Committee, and was asked what the process would be for processing the RFP.  She indicated that the process has not been established.

It was pointed out that the video part of the project could take a very long time.  The RFP process alone could take three to four months.  It was recommended to start as soon as possible on the following things:

1.     Create a pamphlet/brochure

2.     Promote the documents on the website

3.     Start an e-mail/letter campaign

4.     Post a list of resources regarding emergency preparedness on the website

5.     Look at what other Councils/organizations are already doing

6.     Get quotes on copying materials

7.     Link to other organizations so we have access to their websites

8.     List resources on our website

A discussion ensued about creating a brochure.  Ms. Lortie said she would like to help, but canít do it on company time.  Mr. Paul said he has some experience and can help for the review process and consideration.  There was discussion about creating three different brochures:  one for municipal leaders, one for first responders and one for people with disabilities and their loved ones.  Then there was discussion about creating one brochure that would be as universal as possible.  No definitive answer was realized.  It was decided to wait to see what information comes from the towns before deciding anything on the brochures.  It was discussed that since information changes so rapidly, it may make sense to just put the information on the website and update as the updates happen.  There was concern that brochures and pamphlets would become obsolete too quickly.  The estimated cost associated for the brochures would be about $2,500.

Ms. Throwe will send out an e-mail summarizing information that she has and resources for everyone to look at. 

There was encouragement to keep in mind the target markets.  Ms. Wolkner said she can help with graphic design issues; it was also suggested an itemized accounting of the $24,000 amount quoted to do the video to see if there is a more competitive bid out there.

 4.  Schedule date for next meeting:  The Committee decided they want to meet sometime during the week of March 26, 2011.  Ms. Adamczyk will get an e-mail out asking for availability within the next couple of days.   It will be another conference call from 5:00-6:00 PM, either March 27, 28 or 29th. 

5.  Adjourn:  Mr. Curtin made a motion to adjourn the meeting.  It was seconded by Ms. Stenglein.  The meeting was adjourned at 6:03 PM.

Respectfully submitted by,

Cathy Adamczyk   















Content Last Modified on 3/30/2012 5:56:35 PM