CTCDD: CTCDD Meeting 1-10-12

CTCDD Meeting 1-10-12



CT Council on Developmental Disabilities

January 10, 2012


The 173rd meeting of the CT Council on Developmental Disabilities was held on Tuesday, January 10, 2012 from 10:00 AM to 3:00 PM at the CCSU, ITBD, New Britain.

Presiding: Frank Reed,  


Recorder of Minutes: Molly Cole, Director


Members Present: Darlene Borre, John Curtin, Gabriela Freyre-Calish, Jacqueline Jamison,  Michelle Johnson, David King, William Knight, Mary Ann Lombardi, Jennifer Lortie, Laura Marcinauskis, Zuleika Martinez, Sabra Mayo, Peter Morrissette, Frank Reed, Monica Smyth, Brenda Stenglein, Guy Sullivan, Jennifer Throwe, Cathy Wolkner, Dwayne Paul (on phone).


Staff: Molly Cole, Mary Ann Langton, Cathy Adamczyk


Guests: Ada Suarez, Pending appointee from OP; Alicia Kucharczyk; Pending appointee from BRS; Rhonda Kempton, Pending Appointee from SDE; Jamie Lazaroff, Self Advocate, ARC of Quinnebaug, Mike Bernier, ARC of Quinnebaug; Walt Glomb, ARC of CT; Jamar Cherry, DDS; Brenetta Henry, AFCAMP; Ellen Mathis, AFCAMP; Sue Salters, Independence Unlimited.   


Meeting Assistant:  Lorraine Defreitas


Mr. Reed called the meeting to order at 10:00 He welcomed all present and moved directly to public comment:


Jamie Lazaroff spoke about transportation as a major barrier to achieving many of the goals in the five year plan.  He also state that attitudes towards people with intellectual and developmental disabilities are improving, but use of the R word continues.  The Council should put pressure on the movie industry. When asked how Mr. Lazaroff is able to access services, employment and health care, he replied that he has enough friends and contacts to find transportation. 

Susan Salter, Independence Unlimited, spoke about the Visit-ability program. This program focused on improving housing accessibility by focusing on new home construction that incorporated 3 accessible features. The conducted outreach and training on this.   The project also worked with Rep Ken Green to pass PA 1056 in 2009 that requested home builders to voluntarily adapt their new home construction.  When asked about outcomes, Ms. Salter stated that they did not tract outcomes following training our outreach efforts.    

Walt Glomb, CT ARC, addressed the need to educate families regarding options for inclusive employment, community living and health care for individuals who have complex care needs.  In each of these goal areas, families need to understand the best practices for full inclusion and strongly urges the Council o consider implementing training on best practice as part of the activities related to goal areas.  He also expressed that he would like to see the Aging in Place model expanded beyond Danbury.  He also indicated a need for more educational information on policy changes, DDS changes, and potential impacts. 


Public Comment concluded at 10:25 AM.


1.*Approval of Agenda: Monica Smyth moved to accept the agenda with no changes. John Curtin secondedMr. Sullivan requested that the Report of the Executive Committee meeting be included on the agenda under committee reports. The change was made and the agenda was approved with the inclusion of the Executive Committee report under committees.


2.  Comments from the Chair:  Chairman welcomed new members to the council. 


3.  *Approval of Minutes: Monica Smyth moved to approve the minutes of the November 15th meeting of the Council.  John Curtin seconded. Mr. Knight abstained and the minutes were approved with no changes.


4.  *Adjourn to Executive session:    Mr. Knight moved to adjourn to Executive Session to discuss the performance appraisal of the Executive Director.  Ms. Smyth seconded.  The motion carried and the council adjourned to Executive session at 10:30 A.M. The Council resumed its public meeting at 11:05.


5.  Mission Moment:  John Curtin presented an overview of his experience attending the National Association of Councils on Developmental Disabilities (NACDD) conference and the Alliance for Full Participation employment conference that followed NACDD. He met a lot of friends that he still e-mails.  He has a photo of himself with Rep. Rosa DeLauro which he will send so we can put it on our web site.  He felt he learned a lot about employment and employment possibilities for people who are self advocates.  He met many people who were involved in different kinds of jobs.  He attended MANY sessions every day and learned a lot about businesses and how people can be employed, and he joined the state AFP team with Molly Cole.  He also had fun!! When asked about his own employment, John informed the group that he has three jobs and the biggest challenge is transportation.


6. Report from Executive Director.    Molly Cole provided a brief overview from her report.  A new Disability Policy specialist has been hired as of December 2.  The PPR report for the period from 10/1/10 to 9/30/11 was submitted in December.  Partners in Policymaking will begin on February 10 and the participants have been selected.  Several current council members will be in the class.    She provided a PowerPoint of budget highlights and an excel sheet for those who would like to see more detail.  $1,135,888 is remaining in the budget as of January 1, 2012.  Expenditures were significantly reduced in the last quarter of 2010-11 due to staff vacancies.  The Council also made significant cuts in funding of initiatives.  Thus there are additional funds.  Mrs. Cole cautioned the Council that they should be cautious in their spending, given the uncertainty in Washington about future allocations.  She did indicate that they do need to fund some initiatives this year that would yield reportable outcomes on our goals.  Additionally, she noted that Partners has not incurred any costs to date, that we received $22,000 from P&A towards Partners training and the retreat with Allan Bergman, and we received $2000 from ITACC towards the retreat.  Partners will not expend the $60,000 allocated by the Council. This funding was under self advocacy/leadership.  She received a telephone request for the Council to fund several individuals to attend the SABE conference next summer in Minnesota.  Should the Council decide to fund this, dollars could come from the unexpended amounts in the Partners budget and would not require additional allocation.  She will come back to the Council once costs and conference details become available. 


7.  Committee Reports:   Each Committee reported as follows:

·         Membership:  Ms. Mayo reported on membership.  The council has filled all agency vacancies, with three representatives pending approval (OPA, DOE and DSS).  The council is awaiting a representative from DDS, although this representation is not mandated.  There are three additional vacancies- 2 self advocates and one parent.  Three council members will retire in 2012, and a number of council members will need re-appointments in 2012.

·         APIE:  Ms. Cole reported that Mr. Paul (not able to attend the meeting) is still requesting direction from the Council for this committee, and feels he should not chair the committee.  Ms Cole reminded the Council that the work of each committee should address the priority areas identified by the Council—health, employment and housing.  So, for example, APIE could focus on public education, awareness and advocacy around inclusive employment issues; Policy would address the policy issues of shifting funding towards inclusive employment and away from dayhab and sheltered workshops.   PPR would focus on funding initiatives that support outcomes in these areas. 

·         Proposal Review Committee: Mr. Sullivan reported on the Proposal Review Committee.  The committee met on December 8, 2011.  They would like another agency representative on the committee and were going to request the Mark Keenan (DPH) consider joining the committee.  Mr. Sullivan noted that Ms Cole has been trained in DDS Suite and that this promises to provide better data, grant awarding and reporting for the Council.   The Committee would also like to consider an award for a grantee who hired a person with disabilities (real work/real pay). 

·         Public Policy/legislation: Mr. Knight reported on this committee.  The committee needs new members before the start of the legislative session. They testified on several bills last year and anticipate addressing number of issues this year including PCA/unionization. 

·         Executive Committee:  Mr. Reed reported on the January 6 meeting.  Mr. Sullivan read a previously prepared motion to the council which could not be seconded or voted upon because it was outside the scope of the council's by-laws.  Mr. Sullivan's motion would have had to been prefaced with a motion that the council would be willing to hear and consider a motion outside the scope of its by-laws.   Upon the onset of the reading of this motion members began leaving the meeting.  The following members left: Curtin, Smyth, Knight, Johnson, Lortie, Morrissette, Mayo, King and Martinez.  The Council had no quorum to vote on the motion.  Mr. Reed indicated that the motion was out of order as a personal attack and Mrs. Lombardi indicated that Mr. Reed was not named in the EEOC suit.   Mr. Knight returned and made a Point of Order:  The discussion of this motion was not appropriate to the discussion under committee reports. The Council members returned and a quorum was reinstated


7.  By Laws:  *Mr. Reed indicated that there are a number of revisions that need to be made to the by-laws and requested the formation of a special committee to address this.  Mr. Knight made a motion to create a special by-laws committee. Ms. Lortie seconded and the motion carried unanimously.  A sign up for this committee, as well as all other committees was posted and members were asked to sign up for committees at lunch. 


8.  Work Groups: The council work groups convened for Housing, Health and Employment.  Each group reported out as follows:


·                     Employment:  The employment work group developed a two year plan to conduct a needs assessment and implement Project Search.  Project Search is a nationally recognized initiative that addresses transition from high school into employment.    


Year one of the employment initiative will be needs assessment and planning:  

A)                Meetings with key individuals and agencies.  DDC staff will initiate the meetings and involve Council members as often as possible. 

B)                Breakfasts with a few chambers of commerce (Torrington, New Haven, Eastern Connecticut) to address SWOT issues in employing people with disabilities. Attendees will include large businesses who would be involved in Project Search.   


Year One planning budget request is   $20,000 for use as follows:  $5,000 for meeting costs; $10,000 for costs to bring personnel into the state from Project Search; $5,000 to host the meeting with Project Search staff. 

Year Two budget request is $60,000.  This includes the costs associated with full implementation of Project Search in Connecticut. Should there be funds remaining from year one of the initiative, the allocation for year two will be reduced.


OUTCOMES:  Year one will provide data from the  needs assessment and development of key linkages to implement Project Search in year two, as well as a work plan and time line for implementation.   Year two will provide quantitative and qualitative data from implementation: number of youth trained and moved to inclusive employment, challenges, strategies, businesses engages and a plan to sustain Project Search within the state.


*Council funding for employment:  Monica Smyth made a motion to allocate a total of $80,000 to support the employment initiative.  Bill Knight seconded.  Discussion: The Council Proposal Review Committee needs to review and approve all Council initiatives.  The motion was revised:  Allocate a total of $80,000 pending approval of the Proposal Review Committee to support the employment initiative.  The motion carried.      


·                     Housing: The housing work group will focus on developing a plan to yield measurable goals and outcomes related to accessible housing options.  They are considering developing an informational booklet on housing options, featuring stories of individuals, innovative ideas, and specific information on housing options.  They will meet again with Visit-ability, but are aware that any effort in this arena needs to produce measurable outcomes.  The work group is proposing an award to innovative groups that could promote awareness of accessible housing options. 

·                     Health: The Health work group is focusing on Emergency Preparedness. This includes education of individuals and family members on personal accountability/responsibility and education of leadership and first responders. The training for first responders has been implemented with over 2,000 persons across the state in partnership with the UCEDD.  There is no outcome data on this training.  If there is a way to track outcomes, the training could be videotaped and disseminated. Funding would be needed to make, copy and disseminate the training.  They would like to identify communities who have used best practices in emergency preparedness that includes persons with disabilities.  They could do that for two years, then have a statewide conference in the third year.  The group will begin by reviewing the findings of the two storm panel convened by the Governor.  


9.  *Robotics:  Mr. Reed stated that Trinity College, while requesting no funds from the DD Council, would like to list the Council in its program as a founding sponsor, and would like Mr. Reed to present at their spring event.  Monica Smyth made a motion to allow Trinity College to use the logo and to have Mr. Reed present at the robotics event.  Mr. Curtin seconded.  The motion carried.  Ms. Freyre-Calish abstained.    


10.  March Agenda:  Ms. Smyth requested that we move work group meetings to the morning.  It would also be helpful for state agency representatives to do a brief presentation on ways that they support people with disabilities in their agencies. 


  11. *Adjournment:  John Curtin moved to adjourn and Michelle Johnson seconded the motion.  The Council adjourned at 2:40 PM.


Minutes Submitted by

Molly Cole

Approved 3-6-12


Content Last Modified on 3/9/2012 12:41:34 PM