CTCDD: CTCDD Meeting 7-7-11

CTCDD Meeting 7-7-11


Connecticut Council on Developmental Disabilities


460 Capitol Avenue, Hartford, CT  06106 (860) 418-6157


CT Council on Developmental Disabilities

Special Meeting July 7, 2011

Meeting Minutes

The 170th meeting of the CT Council on Developmental Disabilities was held on Thursday, July 7, 2011 from 10:15 AM to 3 PM at the Institute of Technology and Business Development/Central Connecticut State University, New Britain.


Presiding: Frank Reed, Vice-Chair

Recorder of Minutes: Molly Cole, Director


Members Present: Joyce Baker, Stephen Belske, Darlene Borre, Larry Carlson, John Curtin, Michelle Johnson, Mark Keenan, David King, William Knight, Maryann Lombardi, Zuleika Martinez, Sabra Mayo, Peter Morrissette, Dwayne Paul (by phone) Sarah Rafala, Frank Reed, Monica Smyth


Excused Absence: Kathryn DuPree, Fred Frank, Gabriela Frayre-Calish, Haley Kelley, Jennifer Lortie, Guy Sullivan, Anita Tremarche, Pat Tyler,


Staff: Molly Cole, Mary Ann Langton

Guest/Facilitator: Charlan Corlies


Frank Reed, Council Vice-Chair, called the meeting to order at 10:20 A.M.


Announcement: Mr.  Reed announced that Anita Tremarche, Council Chair, was unable to attend today’s meeting and that he would preside in her absence.


Announcement: Mr. Reed also reminded the Council that this is a special meeting of the Council and therefore the minutes distributed via e-mail on July 6 would not be discussed until the regular meeting in September.


Change in Agenda: Mr. Reed requested a change in the agenda to allow an extra half hour to work on the five year plan.  John Curtin –moved; Monica Smyth seconded. Unanimous approval, Agenda modified.


Mr. Curtin moved that the agenda be modified and Ms. Smyth seconded.  The motion passed unanimously.


Welcome to new Director:  Frank Reed welcomed Molly Cole, the new Director of the Council on Developmental Disabilities. 


Work on State Plan:  Molly Cole and Charlan Corlies presented information and an overview of the process for completing the state plan.  Four documents were presented to the Council: 

·         Information on  Health and Persons with Developmental Disabilities

·         Information on Employment and Persons with Developmental Disabilities

·         Information on Housing and Persons with Developmental Disabilities

·         An overview of the process/content of the state plan.


Ms. Cole reviewed the documents and Ms. Corlies reviewed the process for the meeting. The group would discuss their top three priority areas, as ranked from the work at the previous meeting. Ten Council members returned feedback on selection of these priorities which are:  housing, employment and health (which were followed closely by transportation and education).     and would also discuss a goal related to self advocacy as required by ADD.  The Council broke into three work groups to discuss each of these areas as well as self advocacy , which is a separate goal required by ADD to be included in the five year plan.  The work groups built on the work from the June 14th meeting, using the additional information presented.  Each group was charged with developing strategies for year one and two. 


Reporting Out from Work Groups:

Ms. Mayo reported from group one, Ms. Smyth reported from group two and Ms. Borre reported from group three.


Self Advocacy: 

·         Focus on training and access to tools to support self advocacy 

·         Identify leaders and emerging leaders.

·         Educate Council members on services/supports

·         Support youth and young parents to speak about transition issues in high schools.

·         Address accessibility issues trough transit districts and other best practices.

·         Build relationships with local media

·         Support self advocates to speak to other youth about adult life as youth transition to adulthood

·         Support local towns to address disability issues.

·         Establish a mentor/advocacy program

·         Use specific expertise to assist others

·         Consider implementing Partners in Policymaking training to develop leaders

·         Improve the DDC website to use as a clearinghouse for self advocate information, toolkits, etc.

·         Develop an interactive list serve

·         Consider PSA, TV, and Radio to reach those who are not connected to the internet.



·         Provide training and information on the Affordable Care Act

·         Build on existing local infrastructure and community partners who have an interest in promoting health through self advocacy

·         Update research for professionals related to disabilities including information about health and wellness for specific disabilities. 

·         Address the scarcity of adult providers who can treat adults who have disabilities and complex care needs, since there are not enough of these health care providers.

·         Improve communication with doctors and other health care providers.

·         Educate health care providers on right to care and access to resources

·         Train medical students

·         Include sensitivity training in recertification or professional development opportunities. 




·         Improve information and access to housing that is barrier free and incorporates universal design.

·         Encourage innovative approaches in housing.  Including addressing sensory issues or other unique needs in housing that may preclude group homes as an option Work with zoning boards and public housing. 

·         Work with city programs to fund housing modifications ( like at City Hall in Hartford)

·         Advocate for more equal access to existing housing. 

·         Develop accessible family units (2-3 bedrooms)

·         Consider using housing grants to rent or purchase. 

·         Housing in a neighborhood should be fully inclusive

·         Develop universal design housing toolkit for multiple audiences to demonstrate demand and benefit of universal design housing 

·         Universal design without purchase assistance won’t help.  Innovative funding must be considered--how is it possible to save funds for a down payment on a home and not lose benefits?  Yesterday’s answers have nothing to do with today’s problems. 



·         Research jobs that people might do from home with personal assistants.

·         Support jobs at DSS through waivers. 

·         Use personal managers.

·         Get employers to use trial employment, Improved interview strategies, and modified evaluations as strategies to sustain permanent employment.

·         Use Connect-Ability

·         Promote job creation for people with disabilities using entrepreneurial efforts, internships, mentorships, trainings, building on existing organizations.

·         Offer from Beth Mount.

·         Support initiatives that balance employment and benefits. 

·         BRS has benefit counselors.


Ms Corlies will transcribe all notes, and will submit those to Ms. Cole.  The Council will receive an e-mail of the final plan by COB Monday July 11 requesting final approval of the plan before it is posted for public comment on Friday July 15th.  Those not responding will be called, so that full Council input is received prior to posting the plan.  The entire plan with all documentation will be submitted to ADD on time, by August 15, 2011.  


Report from the Proposal Review Committee:


In the absence of the chair and co-chair (Mr. Sullivan and Ms. Freyre-Calish) Ms. Smyth presented the recommendations from Proposal Review Committee for consideration by the Council.  Each grantee was discussed: 


·         Head Start (DCF) for parents with cognitive disabilities. (Priority Area: Self Advocacy)  The committee recommends funding $15,000 for statewide training. The grantee requested $60,000.  The committee did not recommend funding for development of a manual and other printed material and development of a white paper. 



Ms. Lombardi moved to ratify the Committee’s recommendation and Mr. Knight seconded the motion.


Discussion on the motion:  Mr. Carlson asked if this is funding for a state agency or a Coalition.    Ms. Smyth responded that this is a coalition and the Council is not funding another state agency.   Mr. Keenan asked how long the Council has funded this initiative.   Ms. Smyth stated that the Council has funded this project for two years and that the training was the most successful component of the project, which is why that was the portion the committee, recommended funding. . 


Mr. Reed called for a vote on the motion. The motion carried unanimously.


·         WECAHR:  Ms. Smyth stated that the committee had not received the final report form WECAHR before their June 8th meeting.  Therefore, the committee recommends tabling a discussion on this proposal until the committee has reviewed the final report and can make a recommendation to the full Council in September.


Mr. Knight moved that a decision on this proposal be tabled until the committee has reviewed the final report and made a recommendation to the Council at their September meeting. Ms. Lombardi seconded. 


Discussion: Ms. Langton stated that the report was mailed to the committee two weeks ago and that the funding for this project ended June 30th.  WECAHR has already contact the DD Office regarding their continuation funding.   If the committee meets within two weeks, the Council still cannot ratify a recommendation until September, which leaves WECAHR without funding for one quarter. This is an aging in place initiative requested by the DD Council.  The report was not due until the 30th of June and funding ended on the 30th of June.  Ms. Cole state that the PRC and the Council need to revise the process of reporting and review dates so that this lapse does not happen in the future.  Ms. Smyth stated that the Committee is revising manner in which continuation requests are reviewed.  Ms. Cole will communicate this to WECAHR.


Mr. Knight withdrew the Motion.


Ms. Baker stated that the proposal review committee can meet in the next two weeks and recommend approval of funding and then inform WECAHR that the recommendation must be ratified by the entire Council.


Mr. Knight again moved that a decision on this proposal be tabled until the committee has reviewed the final report and made a recommendation to the Council at their September meeting. Ms. Lombardi seconded. The motion passed unanimously. 


·         ECONN: (Priority areas: Self advocacy, Employment, Education, Inclusion) The committee recommends funding $50,000 to continue training for a second year and specifically to reach more family members and nontraditional groups.   The request from ECONN was for $60,000, because they were being funded for an additional six months for a total of 18 months.  The first year of funding was for $40,000.  In the first year the organization was funded to teach trainers, schools districts and families on MAPS and PATHS. (Ms Smyth r did not participate in the discussion of this proposal during committee meeting, due to conflict of interest. Training in year one was mostly to school personnel.  They did not recommend funding for the two consultants (Pierpont et al)



Mr. Paul made a Motion to ratify the Committee recommendation to fund ECONN for $50,000 for 18 months.   Ms. Lombardi seconded. The motion passed unanimously.


·         Connecticut Community Care, Inc.  The committee recommends de-funding this project. This is the third year of the project and the request was for $103,000.  This grant was to assist with support brokers for system change. The committee had been instructed to cut back on funding for Council initiatives and felt that this was one initiative that they could cut. 


Ms. Lombardi moved to ratify the committee recommendation to de-fund CCCI. Mr. Curtin seconded.


Discussion:  Ms. Langton reminded the group that this is a system change grant, designed to change policy.    Under the PCA waiver a person cannot get community support to assist in learning how to manage a PCA.  There are many people who cannot do this and fall through the cracks.  Money Follows the Person takes people out of nursing homes into the community.  But many of these individuals only know how to live in a nursing home and don’t know how to hire and manage a PCA. 

Ms. Smyth questioned whether the Council can afford to fund this proposal.  It’s not a statement of the value, but rather priorities based on outcomes and numbers served.   Ms. Langton stated that the staffs who are managing the PCA waiver are sold on this model program and have agreed propose an amendment in the waiver to include these valuable services.  Mr. Carlson stated that given the current fiscal crisis, Medicaid will not be amended to fund this.  This could happen a later time but not right now. 


Mr. Reed called for a vote on motion. The motion passed unanimously. Mr. Carlson abstained.


·         Connecticut Legal Services.  The committee recommends funding $60, 000 for 18 more months.  This project trains people in hospital Emergency Departments and other settings, including grand rounds, to be aware of rights of persons with disabilities. 


Ms. Baker moved to ratify the committee’s recommendation to fund Ct Legal services for $60,000 for 18 months.  Ms. Lombardi seconded.


Discussion:  Mr. Keenan asked if training was limited to grand rounds, and what is included in the training?  Ms. Smyth stated that hospital staff are trained for emergency room, admission and discharge planning. The training includes information on the rights of people with disabilities.  Three hospitals are included in the Waterbury Torrington communities. The first year focused on development of training modules and the project worked to engage hospital staff.  Ms. Smyth stated that the committee feels that the program is innovative and training could spread to other hospitals using modules.  Mr. Keenan questioned whether there is a cost associated with developing hospital relationships.  The committee recommended reviewing this project again in six months.  Controls on the recommendation include an outpatient survey to learn how effective the training and advice has been.  This proposal changes systems through training. The MOU will include the controls. 


Mr. Knight moved that the Council ratify the committee recommendation to fund Ct Legal Services for $60,000.  Mr. Curtin seconded.  The motion passed unanimously. Mr. Keenan abstained. 


·         Request from Tony Record: The committee recommends providing $3,000 of funding to Tony Record to print a brochure for individuals moving out of Southbury.  Mr. Keenan asked if the brochure was generic so that it could be used for people in other institutions that are closing.  Ms. Lombardi stated that the brochure is modeled after one used in Maryland that was adapted for surrounding states.  It will use testimonials from people who have transitioned out of an institution and can be easily adapted for other sites.


Ms. Lombardi moved that the Council ratify the Committee recommendation to fund $3,000 to Tony Record for the Southbury brochure.  John Curtin Seconded.  The motion passed unanimously. 


FEC (First Experience Communications). The committee recommends not funding this proposal.  FEC requested $60,000 to for a public relations campaign for the Council, including establishing a speakers bureau and developing case studies.  $40,000 was previously funded for the first year.  The Committee did believed that their approach was inconsistent with values of the Council (FEC used the concept: Disability as the New Normal) They also felt that a speakers bureau idea did not require funding to FEC, since the DDC could develop speaker’s bureau if it chose to do so.  The committee also felt that the Council did not receive much benefit from the funds already expended. Mr. Paul reminded the Council that a public relations plan was specifically requested by the Council.  He also said that there had been vehement opposition to any staff time being available to provide any publicity or marketing.  In response to this, the APIE committee requested a full Public Relations plan, which is what FEC provided in their proposal.  Ms. Cole described the possible activities that the staff can offer including engaging in good graphic design, developing a brochure and accompanying materials regarding the five year plan, developing a good quality poster display, and establishing a presence with these materials at multiple venues across the state. Mr. Paul stated that while that is helpful it is not implementing a full Public Relations plan. Ms. Lombardi reminded the Council that surveys and focus groups were already completed and that bench marks and deliverables were not included in the report and outcomes from FEC.  Mr. Paul stated that this was discussed at the Council meeting in March, and that benchmarks and timelines were put into the plan and sent out to the Council.   Ms. Lombardi stated that the committee really took exception to the approach of FEC definition of disability as the new normal.  Mr. Paul re-iterated that this is not about FEC, but that he believes the Council would benefit from services from a public relations firm and that the Council needs to designate some funds toward a public relations campaign. 


Ms. Baker moved that the Council table this proposal and seek a proposal from another PR firm. Mr. Paul seconded. 


Discussion: Mr. Reed asked how long the Council would table this proposal. Would it be until the next APIE meeting?  The Committee had already recommended not funding the proposal. 


Ms. Baker amended her motion to propose ratifying the committee recommendation not to fund FEC and to revisit this issue in the APIE committee. Ms Johnson seconded.  The motion passed unanimously.  Mr. Paul abstained.   


Report from the Membership Committee

Ms Mayo state that the Membership Committee met earlier on July 7 and reviewed all the vacancies and re-appointments.  The Committee recommended that the Council maintain the current number of members, and not decrease the membership to 20 by not pursuing any re-appointments.    Interviews for new members will be August 2nd at the Office of Protection and Advocacy from 10 AM to 2PM. 


Mr. Knight moved that the meeting be adjourned.  Ms Mayo seconded.  The motion passed unanimously.


The meeting adjourned at 3PM.





Respectfully submitted,



Molly Cole



Approved 9/13/2011

Content Last Modified on 9/15/2011 8:29:43 PM