CTCDD: CTCDD Meeting 3-9-10

CTCDD Meeting 3-9-10

The 162nd meeting of the CT Council on Developmental Disabilities was held on Tuesday, March 9, 2010, at the Institute of Technology and Business Development/Central Connecticut State University, New Britain.

Council Members Present: Joyce Baker, Stephen Belske, Larry Carlson, Fred Frank, Gabriela Freyre-Calish, Leo Germain, Hayley Kelley, David King, Bill Knight, Maryann Lombardi, Jennifer Lortie, Zuleika Martinez, Sabra Mayo, Peter Morrissette, Perri Murdica, Dwayne Paul, Al Piehl, Sarah Rafala, Frank Reed, Nancy Taylor, Monica Smyth, Anita Tremarche, Acting Chair; and Patricia Tyler.

Excused Absence: Kathryn duPree, Mark Keenan, Tom McCann and Leslie Prior.

Guests Present: Guest of Sabra Mayo and three (3) personal assistants and a meeting assistant.

Staff Present: Mary-Ann Langton, Ed Preneta and Angela Klonoski.

Ms. Tremarche called the CT Council meeting to order at 11:00 a.m. and asked for presentations.


Trinity College "Robo Waiter" Service Robots

Ms. Baker introduced David Ahlgren, Karl W. Hallden Professor of Engineering, Trinity College, to present on the CT Councilís "Robo Waiter" Competition.

Professor Ahlgren used PowerPoint with embedded video to show the implementation of the CT Councilís demonstration of service robot competition, which is the first and only such competition in the country. About 10 robots from around the world are expected to compete on Saturday, April 10, 2010. The competition begins at 12:30 p.m. with a symposium on the interaction of service robots and humans. The competition begins at 2:00 p.m. He also demonstrated interactive voting technology with Council members. More information about "Robo Waiter Competition" can be found at:


Council members are encouraged to attend. Also, Council members interested in serving as judges and timers should contact Mary-Ann Langton.

Dawn Lambert, Department of Social Services, re "Money Follows the Person"

Mr. Carlson introduced Dawn Lambert, Department of Social Services, to present an update on "Money Follows the Person" (MFP)

Ms. Lambert used PowerPoint, and distributed a PowerPoint handout, to report on the status of people who want to move out of institutions and into the community under Connecticutís MFP program. Well over 10,000 people may meet the eligibility criteria for MFP. Nearly 1,200 people in 170 skilled nursing facilities (SNFs) have applied for the program. As of February 2010, 191 people have transitioned into the community from 88 SNFs. About one-third are receiving supports in the community under the Personal Care Assistance (PCA) Home and Community Based Services (HCBS) waiver under Medicaid, about one-third are people who are elderly and receiving service under the Elder HCBS waiver and the final third are people receiving services under the Acquired Brain Injury (ABI) HCBS waiver, mental health services or a Department of Developmental Services (DDS) HCBS waiver. About 890 people are expected to be transitioned by the end of December 2012. The cost to the state for SNF care is about $2,700 per month while the cost under MFP is about $1,000 per month. The purpose of MFP is to overcome the institutional bias in Medicaid where paying for institutional care is an entitlement and paying in-home and in the community supports under HCBS waivers is an option that the state can terminate.

Council members had many questions but too little time to thoroughly discuss MFP. Ms. Lambertís PowerPoint will be shared with all Council members. Questions about MFP may be e-mailed to Dawn.Lambert@ct.gov.


Mr. Knight moved to approve the minutes of January 12, 2010. Mr. Germain seconded. The motion passed with Ms. Lortie and Ms. Tremarche abstaining due to not being present at the meeting.

Budget Update

Mr. Preneta reported that there was not much change to the budget report distributed with the agenda. Since distributing that report, a few bills were paid and money for new initiatives was moved to the Undesignated line item pending the decisions of the Proposal Review ad hoc Commitee. He said that health care costs increased, which caused the fringe benefit rate to exceed 61%. Mileage reimbursement decreased from $.55 per mile to $.50 per mile. On February 22, 2010, the Governorís Office called to say that the Governorís Office was "OK" with excluding Council staff from future furlough days and that an e-mail was sent to the Office of Policy and Management and Department of Administrative Services with the Governorís Office "OK". Mr. Preneta said that this will increase Salary and Fringe Benefit costs about $1,200 in 2010 and about $2,400 in 2011 but that these increases should be easily absorbed over time.

Old Business

Committee Reports

Advocacy, Public Information and Education Committee

Ms. Lortie reported that Leo Germain has resigned as Committee Chair. Mr. Paul is serving as Acting Chair. The Committee has been working on a request for proposal (RFP) for a communications firm.

With Mr. Germainís resignation, the Committee is free to elect a Chair and Vice Chair at its next meeting.

Legislation, Policy and Planning Committee

Mr. Reed reported that the United States House of Representatives passed H.R. 4247 (Keeping All Students Safe Act) on the use of restraints and seclusion in schools. Sen. Dodd introduced companion legislation (S. 2860) in the United States Senate. The Committee is developing a "one-pager" for parents on how to recognize the use of restraints and seclusion and state requirements for reporting the use of restraints and seclusion in schools. The "one-pager" may be used with Pediatrician and other required reporters of abuse. The Committee will also send a letter to school systems surveying their knowledge about the state law and their willingness to distribute the "one-pager". The United States Justice Department opened an investigation on the use of electric shock and other aversives at the Judge Rotenberg Center. The Committee will send a follow-up letter to the Governor asking the Governor to ban state agencies from making placements at the Center. The Committee will be exploring the training of State Police and how they handle people with developmental disabilities, particularly with the use of tasers. The Committee will be reviewing statutes, policies and procedures applicable to the Department of Developmental Services on the use of aversives. The Committee will send a letter to school systems asking for information about their placement of students with disabilities in out-of-state facilities. Changing state statues on physician assisted suicide is on hold pending a decision by a Connecticut state court on Connecticutís physician assisted suicide statutes. The Committee is working with the Connecticut General Assembly to amend the state penal code definition of "physically helpless" as it applies to sex offenses.

Other Reports

Proposal Review ad hoc Committee

Ms. Taylor was elected to Chair the ad hoc Committee and to report. Following guidelines developed by the ad hoc Committee, the ad hoc Committee approved an application from Educational Consultants of Connecticut to train parents on building circles of support, the McGill Action Planning System (MAPS) and Planning Alternative Tomorrows with Hope (PATH). Decisions are pending while awaiting responses to questions or ad hoc Committee suggestions on the Americans with Disabilities Act (ADA) Coalition of Connecticut for an ADA 20th anniversary celebration, the Connecticut Disability Advocacy Collaborative for a 2010 Convention and Expo, the Arc of Quinebaug Valley for grassroots intensive training on using special education law to achieve inclusion and to avoid the use of aversives, restraints and seclusion and Independence Unlimited for working with architects, developers and landlords on incorporation of universal design. Assuming all the above will be funded, $190,139 remained unspent.

Applications for grassroots intensive training were rejected from St. Joseph College and the Connecticut Parent Advocacy Center (CPAC) and for circles, MAPS and PATH training from Community Options and the Arc of Quinebaug Valley. Applications were not received for naturally occurring living communities (aging in place), transportation, medical safeguards, internships or youth advocacy.

Mr. Preneta noted that several requests for funding by phone and e-mail were rejected in the office that did not meet the purpose of the Developmental Disabilities Act, the mission of the Council or had nothing to do with the Councilís request for proposal. He said one application was rejected for being late. Another application was rejected for not using the Councilís grant application, for not providing copies and for being late. This application was hand delivered but was lost in the internal mail delivery system in the building. While the application was rejected for failure to use the Councilís application and failure to provide copies, he is pursuing the failure of the internal mail delivery system with the Department of Developmental Services (DDS). During the course of the day, all applications except for one were processed smoothly by the DDS internal mail delivery system. As a result of this failure, changes will be made in handling the hand delivery of applications that will consume considerable staff time.

Mr. Paul asked if the Council could use unspent funds to reach priority areas that did not receive a high number of votes at the Councilís September 22, 2009 meeting.

Ms. Tremarche said the Council voted to adopt initiatives receiving a high number of votes. She noted that the lack of responses to some Council initiatives does not mean the Council should abandon high priority initiatives. Ms. Tremarche said the Council has to find other way to implement high priorities.

Mr. Preneta said the lack of responses to some Council initiatives provides the Council with the opportunity to explore implementing initiatives in other ways, including negotiating with entities who expressed interest in initiatives but who did not apply. He said some of the lack of response may be resistance to the Council pushing for systems change.

Mr. Reed, Ms. Tyler and Ms. Smyth thought some of the initiatives might be too broad and may need to be refined and more specific.

Ms. Taylor suggested that the Council might want to use some unspent funds to reproduce a version of the Councilís "Education Toolkit" and then explore negotiating with CPAC to do training using the Toolkit or to decide to dedicate a Council staff person to do the training.

Ms. Taylor moved to set aside $5,000 to reprint a version of the Councilís "Education Toolkit". Mr. Paul seconded. The motion passed unanimously.

With the decision to reprint a version of the Councilís Toolkit, $185,139 remains unspent.

Mr. Knight will explore internships in northwest Connecticut, Mr. Reed will explore transportation in the Housatonic valley, Mr. Paul will explore internships in the lower Naugatuck valley and Ms. Smyth will explore internships in the New Haven area. Ms. Smyth also joined the Proposal Review ad hoc Committee.

New Business

Review Robertís Rules and Bylaws

Ms. Tremarche said that some Council members were interested in exploring changes in the Councilís bylaws. Some of the changes to explore include the process for replacing the Chairs of Committees, rules applicable to Committees, electronic meetings and electronic voting, meeting notices, quorums, making the Proposal Review ad hoc Committee a standing committee, enabling agency representatives to Chair committees, enabling Council members to serve on more than 2 committees, and repeating motions to assure understanding. The process for changing bylaws requires submitting proposed amendments in writing at a Council meeting for discussion and then voting on them at the next Council meeting. Amending the bylaws requires a 2/3rd vote.

Ms. Baker and Mr. Frank expressed concern with electronic meetings.

Ms. Taylor hoped changes would respect all and allow for better geographic diversity and inclusion.

Ms. Tyler moved to establish a Bylaws Revision Task Force. Ms. Taylor seconded. The motion passed unanimously.

Ms. Baker, Ms. Lortie, Mr. Frank, Ms. Taylor, Ms. Tremarche and Ms. Tyler volunteered to serve on the Task Force. Any other Council members interested in serving on the Task Force should contact Ed Preneta. Council members are also encouraged to recommend changes to the bylaws.

Retreat on May 11, 2010

Ms. Tremarche said the next Council meeting will be a Council Retreat on May 11, 2010. The Retreat will be facilitated by Karen Flippo, former Executive Director, National Association of Councils on Developmental Disabilities (NACDD) through a technical assistance contract with NACDD. The Retreat will be held at the Institute of Technology and Business Development, New Britain, from 10:00 a.m. to 3:00 p.m. Beverage and food service will be expanded. The Retreat will address 2011 initiatives, which is the last year of the Councilís current 5 Year Plan, governance (such as bylaws), groundwork for writing a new 5 Year State Plan during 2011 and Mr. Prenetaís transition.

Election of Interim Vice Chair

Ms. Mayo distributed ballots. There were no nominations from the floor. Mr. Reed was elected Interim Vice Chair.

With Mr. Reedís election, Ms. Kelley becomes Acting Chair of the Legislation, Policy and Planning Committee. The Committee is free to elect a Chair and Vice Chair at its next meeting.


Mr. Carlson asked the Council for permission to use excerpts from the Councilís "Able Lives" television series with ConnectAbility, the stateís Medicaid Infrastructure Grant focused on employment of people with disabilities.

Mr. Reed moved to give permission to ConnectAbility to use excerpts from the Councilís "Able Lives" television series. Mr. Knight seconded. The motion passed unanimously.

Ms. Taylor moved to adjourn. Ms. Tyler seconded. The motion passed unanimously.

The meeting adjourned at 2:15 p.m.

Respectfully submitted,

Ed Preneta

Content Last Modified on 5/17/2010 12:30:45 PM