CTCDD: CTCDD Meeting 1-12-10

CTCDD Meeting 1-12-10

The 161st meeting of the CT Council on Developmental Disabilities was held on Tuesday, January 12, 2010, at the Institute of Technology and Business Development/Central Connecticut State University, New Britain. Council Members Present: Joyce Baker, Stephen Belske, Larry Carlson, Kathryn duPree, Gabriela Freyre-Calish, Mark Keenan, Hayley Kelley, David King, Bill Knight, Armand Legault, Chair; Maryann Lombardi, Zuleika Martinez, Sabra Mayo, Tom McCann, Peter Morrissette, Perri Murdica, Dwayne Paul, Leslie Prior, Sarah Rafala, Frank Reed, Nancy Taylor, Monica Smyth, and Patricia Tyler.

Excused Absence: Fred Frank, Leo Germain, Jennifer Lortie, Al Piehl and Anita Tremarche Vice Chair.

Guests Present: Micaela Connery and Tom Fiorentino, Unified Theater; Nancy Prescott, CT Parent Advocacy Center; Lee Learson and Bruce Stovall, New England Assistive Technology (NEAT) Center at Oak Hill; Stan Kosloski; 2 American sign language interpreters; Mike Fuller, Department of Public Health; and three (3) personal assistants.

Staff Present: Mary-Ann Langton, Ed Preneta and Angela Klonoski.

Mr. Legault called the CT Council meeting to order at 11:00 a.m.

Public Forum

Mr. Legault invited the public to present to the Council. The following presented:

Micaela Connery and Tom Fiorentino, Unified Theater, requested support for theatrical troupes featuring the talents of individuals with and without special needs (sic).

Lee Learson and Bruce Stovall, New England Assistive Technology (NEAT) Center at Oak Hill, requested $100,000 a year for 3 years to continue the development and expansion of its assistive technology workplace accommodation services.

Stan Kosloski, representing the Americans with Disabilities Act Coalition (ADACC) of CT and the Disability Advocacy Collaborative (DAC). On behalf of ADACC, he requested $5,000 to support the planning of the 20th anniversary celebration of the Americans with Disabilities Act to be held on July 26, 2010. On behalf of DAC, he requested $5,000 to support the 3rd Disability Convention and Expo to be held at the CT Expo Center in Hartford on August 28, 2010.

Nancy Prescott, CT Parent Advocacy Center, requested support for free, community-based individualized technical assistance, specialized training and support for parents regarding due process rights, and training of community-based providers and school liaisons to provide educational advocacy for parents.

Mr. McCann said that there was nothing to report regarding Southbury State Training School.

Mr. Morrissette reported that there are people who want to move out of skilled nursing facilities under the Money Follows the Person (MFP) program who canít move because they canít get the amount of personal assistance that they need in order to live in the community. Mr. Carlson clarified that ďclient care limitsĒ may be an issue where some people may need care that is beyond the amount of care the current system will allow. This may require advocating for changing the Personal Care Assistance (PCA) waiver. The PCA waiver also requires people to self-direct such things as hiring and firing PCAs and payroll. Mr. Kosloski added that the cost of care must be under a certain amount and that CT could explore a chronic care waiver, which allows for more care than the PCA waiver, or a universal waiver, to overcome having to fit people into one of several CT home and community based services (HCBS) waivers. Ms. Langton said the CT Councilís initiative with CT Community Care, Inc. (CCCI), is demonstrating the use of service brokers and peer mentors in the MFP program. Mr. Reed cautioned that CCCI is only providing backup PCAs in the MFP program. Ms. Baker said that the CT Association of Centers for Independent Living (CACIL) is aware of other stories about people for whom the MFP program is not working.

Mr. Carlson agreed to arrange for Ms. Dawn Lambert to present on CTís MFP program at the Councilís March 9, 2010 meeting.

Mr. Legault thanked the public.


Ms. Mayo moved to approve the minutes of November 16, 2009. Mr. Belske seconded. The motion passed with Ms. Baker and Mr. Keenan abstaining.

Budget Update

Mr. Preneta reported that the only funds remaining in the 2009 Budget were for remaining payments with CT Community Care, Inc. He said People First of CT did not need the balance of $2,750. Those funds were added to funds carried over for use in 2010. The CT Council carried over nearly $176,000 for use in 2010. This is the most money the Council has ever carried over. Mr. Preneta expressed concern that so much money was carried over because the CT Council is so far behind in implementing initiatives.

Mr. Preneta said that Councils received a small increase with the passing of a federal 2010 budget but he could not predict how much of an increase the CT Council will realize. The CT Councilís 2010 budget assumed the same level of funding as the 2009 budget and there were no increases in any operational or staff line items except for fringe benefits. Fringe benefits increased because of a double-digit increase in the cost of health care. He said that later on the agenda the CT Council will be making decisions regarding additional funds for Powerfest and continuation of CT Youth ADAPT. Mr. Preneta noted that in order to balance the budget he proportionally reduced funding for planned but not yet implemented initiatives. The amounts for each of these initiatives were only estimates and could be more or less when implemented. In order for the CT Council to fund anything new, including presentations made during the Pulbic Forum, funds will either be taken from planned initiatives or from 2011 funds later in the Councilís year. Finally, he said a letter has been drafted from the Chairs to the Governor asking for exemption of CT Council staff from future furlough days. The letter will be sent when the CT Council receives official notice from the federal Administration of the actual amount of its 2010 federal allotment.

Advocacy, Public Information and Education Committee

Mr. Paul reported that the Committee had a letter to the editor published on the CT Appeals Court decision to overturn the conviction of a man accused of sexually molesting a woman with severe and multiple disabilities. He also reported the Committee is exploring contracting with a communications professional to help write a CT Council communications plan.

Legislation, Policy and Planning Committee

Mr. Reed reported that the Committee is addressing strengthening CTís restraints and seclusion legislation, a one pager for parents on how to recognize the use of restraints and seclusion, a position paper on the use of restraints and seclusion and on the Judge Rotenberg Center, opposing changes in state statutes to make physician assisted suicide easier, amending the state definition of ďphysically helplessĒ and a follow-up letter to school districts about their out-of-state placements.

Membership and Support Committee

Mr. McCann reported that the Council currently has 2 parent vacancies. Mr. McCann and Ms. Taylor will be retiring from the Council at the end of September 2010. The Council will then have 3 parent vacancies and 1 self-advocate vacancy. Ms. Freyre-Calish will also be up for re-appointment. All of this will be addressed by his Committee in the Spring of 2010.

Transition Committee

Mr. Legault reported that the Committee is on hiatus until later in the year when a national search for a new Director will begin.

Executive Committee

Mr. Legault asked Mr. Preneta to facilitate discussion on recommendations of the Committeeís Powerfest Task Force and handling new initiatives that arise after the Council has made decisions about initiatives.


Mr. Preneta reported that the CT Council had already approved moving $4,950 of CT Youth ADAPT funds to Powerfest for transportation. Of the additional $15,000 the CT Council empowered the task force to spend on Powerfest, the task force spent $11,237. The task force also set aside for Powerfest $8,100 that was to be used for 2010 CT Youth ADAPT but invited the Disability Resource Network (DRN) to reapply for 2010 funds by December 30, 2009. After using DRNís accounting, adding in all actual bills, and recalculating all income and expenses, Mr. Preneta reported that the CT Council and DRN disagreed on when DRNís indirect cost of 10% should be applied and the need for $8,100 more. He said that while there certainly were intangible costs invested in Powerfest, he could not see where $8,100 more is needed for Powerfest. Mr. Preneta said that he applied 10% only against the CT Councilís memorandum of agreement (MOU) of $35,000. DRN applied the 10% against all the total cost of Powerfest. Mr. Preneta said that since the CT Council had no control over the total cost of Powerfest, the CT Council could not be held accountable for an unpredictable and open-ended cost. His calculations indicated that applying the CT Councilís indirect cost logic resulted in a $1,522 surplus. Applying DRNís indirect cost logic resulted in a $274 deficit. Mr. Preneta said he shared all of these calculations and discussion with DRN and asked for comment. There was no comment. He recommended that the CT Council either spend no more on Powerfest or spend no more than $274.

The CT Council discussed a successful Powerfest, lessons learned about partnerships, limiting indirect costs and accepting DRNís indirect cost logic.

Mr. Knight moved that the CT Council spend no more on Powerfest. Ms. Smyth seconded. The motion passed with Mr. King and Ms. Martinez abstaining.

Mr. Preneta said the second issue was CT Youth ADAPT. Since $8,100 set aside for CT Youth ADAPT in 2010 was not needed for Powerfest, the CT Council could continue CT Youth ADAPT in 2010. DRN did not return an application for 2010 by the December 30, 2010, as required. He recommended continued support for CT Youth ADAPT either with DRN or in a request for proposal.

The CT Council discussed the need to continue support for youth advocacy and concern that DRN did not submit an application by the December 30, 2010 deadline.

Ms. Tyler moved that the CT Council not continue support for CT Youth ADAPT with DRN but include advocacy with youth with developmental disabilities in a request for proposal. Mr. Reed seconded. The motion passed with Mr. King and Ms. Martinez abstaining.

Mr. Preneta reported that the process the Executive Committee developed for handling new initiatives that arise during the course of the year after the Council has made decisions about initiatives was included in a section on ďApplying for CT Council FundsĒ developed for the CT Councilís website and shared with the CT Council. He noted that links on the website will take prospective applicants to all the information and forms they will need to apply for CT Council funds listed in a request for proposal or to propose new initiatives to the CT Council.

Ms. Tyler expressed concern that the same entities continue to request funds from the CT Council, new entities do not seem to know about the CT Councilís funds, the Council should designate percentages of funds for different types of initiatives and activities, and the CT Council needs more outcomes. She also said the CT Council should establish a committee to review requests for funds and to make decisions.

Mr. Preneta said the CT Council has an extraordinary track record with reaching new entities and with the start-up of entirely new organizations, including organizations addressing populations in urban and rural poverty areas. The CT Council also optimizes its outreach regarding funding availability with the use of the State of CTís web portal, the CT Councilís web and blog, the use of listserves and e-mail attachments, and distribution by hand at meetings and conferences. He cautioned against putting limits on the CT Councilís required responsibility to implement systems change, support activities and demonstrations. Mr. Preneta said outcomes for systems change have been a hot topic nationally with Councils for over a decade. The CT Councilís request for proposal states expected outcomes, the CT Councilís application requires expected outcomes, all recipients of CT Council funds are required to submit outcome reports and CT Council outcomes are electronically reported annually to the federal administration. He said the CT Council can appoint a proposal review committee without changing bylaws.

Mr. Preneta said the CT Council is already about 3 months behind its usual cyclical schedule for implementing initiatives and expressed concern about further delaying the release of the request for proposals shared with the CT Council and failing to address new ideas raised during the Public Forum. Money Follows the Person and Southbury State Training School can be addressed by the CT Councilís committees. The NEAT proposal cannot be reached with 2010 funds and he is concerned the CT Council is being asked to supplant or replacing lost federal funding, which is prohibited by the Developmental Disabilities Act. This will be explored. The Unified Theater proposal also cannot be reached with 2010 funds, and may be a good program, but there are many good programs in the state. This also will be explored. Proposals for the Americans with Disabilities Act celebration and 2010 Convention were already on the Councilís agenda.

Mr. Paul moved that the CT Council issue the request for proposal. Ms. Smyth seconded.

Ms. Taylor moved to amend the motion to include establishing a committee to review proposals and make decisions. Ms. duPree seconded. The amendment passed with Mr. King and Ms. Martinez abstaining.

The motion, as amended, to issue the request for proposal passed with Mr. King and Ms. Martinez abstaining.

The following volunteered to serve on the Proposal Review Committee: Ms. Baker, Ms. Freyre-Calish, Mr. Paul, Mr. Reed, Ms. Taylor and Ms. Tyler. Mr. Legault and Ms. Tremarche serve as ex-officio.

Ms. Kelley and others discussed the need for the CT Council to be part of a celebration of the 20th Anniversary of the ADA and the 2010 Convention.

Mr. Carlson moved to set aside a total of $10,000 to support the celebration of the 20th Anniversary of the ADA and the 2010 Convention pending the receipt and review of applications by the Proposal Review Committee. Ms. Smyth seconded. The motion passed with Mr. King and Ms. Martinez abstaining.

In the interest of time, the CT Council did not review the Status of September of 2009 Decisions. There was no proposal for a Workshop on Physician Assisted Suicide.

Mr. Paul moved to adjourn. Mr. Belske seconded. The motion passed unanimously.

The meeting adjourned at 2:00 p.m.

Respectfully submitted,

Ed Preneta

Content Last Modified on 3/10/2010 10:21:47 PM