CTCDD: CTCDD Meeting 5-12-2009

CTCDD Meeting 5-12-2009



The 157th meeting and Retreat of the CT Council on Developmental Disabilities was held on Tuesday, May 12, 2009, at the Institute of Technology and Business Development/Central Connecticut State University, New Britain.


Council Members Present:  Cathy Adamczyk, Chair; Patricia Anderson, Joyce Baker, Stephen Belske, Larry Carlson, Patricia Carrin, Sheila Crocker, Kathryn duPree, Lisa Davis, Mary Eberle, John Flanders, Fred Frank, Gabriela Freyre-Calish, Robyn Hescock, Paul Kachevsky, Hayley Kelley, Bill Knight, Armand Legault, Vice Chair; Jennifer Lortie, Peter Morrissette, Frank Reed, Anita Tremarche, Nancy Taylor and Patricia Tyler.


Excused Absence:  Leo Germain, David King, Tom McCann, and Jamie Graham.


Guests Present:  Five (5) personal assistants.


Staff Present:  Mary-Ann Langton, Ed Preneta and Angela Spino.


Ms. Adamczyk called the CT Council meeting to order at 10:35 a.m. 




          Mr. Reed moved to approve the minutes of March 10, 2009.  Mr. Belske seconded.  There was no discussion.  The motion passed with Ms. Taylor abstaining.


Budget Update


          Mr. Preneta reported that the CT Councilís 2009 budget will have a significant surplus. 


          On the Income side, with the signing of a 2009 federal budget, the CT Councilís budget grew from $695,615 to $720,427.  $375 was also paid to the CT Council by ďno showsĒ for Social Role Valorization (values-based) training.  The CT Councilís 2009 budget is $781,192.


          On the Expenses side, considerable funds are being saved in many line items.  Because of cuts in state government, there will not be a 3% increase in salaries and fringe benefits, and there will be no merit bonuses, thereby saving about $9,300.  The CT Councilís Retreat was not held in a hotel, thereby saving about $3,700.  Out-of-state travel has been suspended, thereby saving about $5,200.  The Annual Report was produced in-house without graphic design or printing, thereby saving about $3,500.  These items total $21,700.  $19,744 remained in the printing line item for a state guide to services and supports.  Transportation costs are expected to exceed the budget of $8,393 to about $15,200, but these costs are spread over two budget years.  The amount lost to the CT General Fund will grow from $34,780 to $36,021.


          The state and federal financial crisis has made it more difficult to get some CT Council initiatives started.  A Family Lives in-home nursing service, a transportation initiative with the Department of Transportation and Visitable SmartHomes may not startup.  These total $121,000.  Holding a Day of Respect conference cost $6,200 less than planned.  $5,000 for Mothers From Hell is on hold.  $23,453 is in the undesignated line item for future CT Council use.  $8,500 is being returned to the CT Council from the UCEDD from a terminated parent leadership and advocacy training program.  $33,728 remained in a line item for grassroots intensive training.  Funds for a statewide youth event have not yet been set aside.  A decision on funding is awaiting fund transfers from state agencies.  Unused funds total about $151,000 thereby enabling a CT Council task force on back up personal assistants to designate $115,000 to demonstrate the use of service brokers and peer-mentors as part of Connecticutís Money Follows the Person program.


          Mr. Preneta noted that the Presidentís 2010 budget includes keeping Councils at level funding.  He said he would provide more specific budget numbers at the Councilís June 9, 2009 meeting.


Ms. Adamczyk thanked Mr. Preneta.




          Ms. Adamczyk turned the meeting over to Mr. Scott Blum who offered to serve as facilitator.


          Mr. Blum was aware that there were some controversial items on the CT Council agenda and proposed starting with those items.


Mothers From Hell 2 Connecticut


          Mr. Blum asked for discussion about Mothers From Hell 2 Connecticut (MFH2CT).


          Ms. Taylor opened discussion with objections to the content of the website and the concept.  After lively, and sometimes heated, discussion, CT Council members all generally agreed that the content of the website was objectionable.  CT Council members also objected to the release of the website before CT Council member review and approval.  There was support, however, for providing a resource specific to parents whose sons and daughters have been subject to aversives, restraints, seclusion and sexual assault. 


          Mr. Blum summarized that the idea was good but it was implemented poorly.


          Ms. Eberle moved that the MFH2CT website be taken down temporarily and that a task force be established to rework the concept for Council approval.  Mr. Knight seconded.  The motion passed unanimously.


          Continuing lively, and sometimes heated, discussion focused on whether or not to hold a planned June 6, 2009 inaugural meeting of MFH2CT.  Discussion reflected objection to the content of the website, the name and the planning of the event without CT Council member involvement.  There was support, however, for the resources being made available to parents and the intent to harness the passion of these parents.


          Ms. Kelley moved to cancel the planned MFH2CT event with the possibility of rescheduling a new event with the involvement of the MFH2CT task force in planning the event.  Ms. Taylor seconded.  The motion passed with Ms. Baker and Ms. Lortie abstaining.


          The following volunteered to serve on a MFH2CT task force:

Patti Carrin

Paul Kachevsky

Hayley Kelley

Nancy Taylor

Anita Tremarche


Parent Leadership and Advocacy Training


          Mr. Blum asked for Parent Leadership and Advocacy Training.


          Ms. Tremarche reported that the CT Council had entered into an agreement with the UCEDD and CT Down Syndrome Congress (CDSC) to plan and implement parent leadership and advocacy training.  The CT Councilís site visit team visit on the training was difficult.  The UCEDD and CDSC were not prepared for the visit, the memorandum of understanding was signed late but the training was started, and the site visit team did not have the information needed to do a site visit.  The memorandum of understanding was ultimately terminated by the UCEDD and funds are being returned to the CT Council, nevertheless, the site visit was relatively positive.


          Ms. Freyre-Calish said the memorandum of understanding was signed the week before the site visit.  All the paperwork for this initiative, including information about the site visit, was lodged for some time in the universityís grants and contracts office.  Information about the site visit was overlooked. 


          There was considerable lively, and sometimes heated, discussion regarding CT Council process, CT Council member involvement and staff leadership.


          Mr. Blum summarized these were items for discussion under CT Council governance.


          Ms. Taylor moved that the original parent leadership and advocacy training site visit team return with CT Council staff to the UCEDD and CDSC to discuss a continuing relationship.  Ms. Anderson seconded.  The motion passed with Ms. Carrin, Mr. Legault and Ms. Tyler voting No.  Ms. Adamczyk, Ms. Freyre-Calish, Mr. Kachevsky, Ms. Lortie and Mr. Reed abstained.


Personal Assistants Backup


          Mr.Blum asked for discussion regarding personal assistants backup.


          Mr. Reed reported that a task force of CT Council members had been exploring a system of personal assistant backup with Connecticut Community Care, Inc., (CCCI) who was the state approved contractor for such services under the Money Follows the Person (MFP) program.  The purpose for MFP was to help people move out of skilled nursing facilities.  CCCI was providing a triage system of backup personal assistants.  The task force worked with CCCI to create a demonstration of service brokers and peer mentors as part of the personal assistant backup services under the MFP program.  The service brokers and peer mentors will be evaluated by the University of Connecticutís Center on Aging, who is the evaluator of the MFP program.    The task force designated $115,000 for the first year of the demonstration.


          Mr. Carlson noted that if this demonstration worked, it could be adopted by MFP and implemented statewide and it could also be adopted by the states Personal Care Assistants waiver program.


          After a few comments and questions regarding on going CT Council member involvement, the CT Council approved the designation of funds.




          Mr. Blum asked for discussion of Toolkits.


          Ms. Tremarche reported that ďAble LivesĒ Community Inclusion and Education toolkits are being distributed.  The supply is rapidly dwindling.  Ms. Langton is the contact for Community Inclusion toolkits and Ms. Carrin and Ms. Spino are the contacts for Education toolkits.  Distribution of both toolkits began with a meeting on April 14, 2009 with people interested in obtaining toolkits.  Community Inclusion toolkits are distributed at various meetings and conferences.  Education toolkits are distributed only at scheduled training meetings with Ms. Carrin and Ms. Spino.


          Ms. Adamczyk, Mr. Legault and Mr. Blum concluded that discussion on 2010 initiatives and CT Council governance and management be tabled to the June 9, 2009 meeting.


          The CT Council thanked Mr. Blum for facilitating the meeting.


          Mr. Flanders moved to adjourn.  Ms. Eberle seconded.   The motion passed unanimously.


          The meeting adjourned at 2:25 p.m.




                                                                   Respectfully submitted,




                                                                   Ed Preneta




Content Last Modified on 6/17/2009 3:45:06 PM