CTCDD - Ct. Council on Developmental Disabilities
{The mission of the CT Council on Developmental Disabilities is to promote the full inclusion of all people with disabilities in community life.}

NOTE:  The Council on Developmental Disabilities is not the Department of Developmental Services.  The Council is not a direct service provider.  If you are trying to reach the Department of Developmental Services, please dial 860-418-6000.   

Dear Friends:


My name is Bill Knight, and I am the Chairman of the CT Council on Developmental Disabilities.  On behalf of the Council, I am pleased to welcome you to our web site.


We invite you to browse through the site, which will give you information about the Council and information about issues, programs, events and policies affecting people with disabilities. 


The Council's mission is to ensure the full inclusion of people with developmental disabilities in the community of their choice.  We achieve our mission through activities that promote self-advocacy, capacity building, and systems change.


Our hope is that you'll find this web site informative.  If you have questions or comments about the site please contact us.



Bill Knight, Chairman CT Council on Developmental Disabilities

{Partners 2012 Class}
Partners in Policymaking graduates and faculty, Class of 2012
Important Information and Updates


Monday, December 8, Sheraton Rocky Hill 8:30 to 3:30 Breakfast and Lunch provided For more information or to register click here.

The Connecticut Council on Developmental Disabilities is seeking proposals to plan and implement a pilot program providing on demand transportation for persons with disabilities in the state

Limited access to transportation further isolates people with disabilities and limits access to jobs, community and social activities. Individuals with disabilities need access to affordable, accessible on-demand transportation.  The proposed plan should (1) Research the feasibility of an on demand system of transportation for individuals with disabilities in Connecticut.  This  study can consider the feasibility of technology (as utilized by systems such as UBER), volunteer networks, the use of underutilized accessible vehicles after hours and on weekends, or other solutions to providing an on demand system of transportation for persons with disabilities.  This study can focus on the entire state, or on a targeted region.  (2) Implement a pilot demonstration for years two and three of the project.  A detailed feasibility study/plan to implement an on demand system of transportation for people with disabilities and a pilot demonstration in years two and three of the plan developed in year one.  The pilot will collect data on access and critical outcomes for people with disabilities, as well as process, cost and utilization data necessary to replicate the model.  The study will be completed in  seven  months, from January 1  to July 31, 2015.   Based on the recommendations in the study, the Council will consider funding two additional years to implement a pilot of the plan developed in year one.  The pilot will run from October 1, 2015 through September 30, 2017.  The total project will not exceed three years.

Link to the full RFP 

Able Lives

A lot of you may remember the Able Lives website that is run by the CTCDD that hosts the series of TV shows that were produced on disability issues by CPTV and the CTCDD.  The Able Lives website was in need of major repairs and updates.  That work has now been completed and the site is now once again available at ablelives.org.  The new Able Lives also has a forum which we hope to use to start an online dialog concerning disability issues here in Connecticut.  Once you go to Able Lives the forum link is at the top of the page.  An account is required to use the forum.  Anyone is welcome to sign up for an account at ablelives.org

Panel Discussion

On Friday, October 18th  from 10 to noon Marilyn Golden from the Disability Rights Education and Defense Fund will be the featured speaker on a panel at the Legislative Office Building.  The  topic will be Physician Assisted Suicide: A Dialogue about the Potential Impact on People with Disabilities. Click here for more information and to register.


Connecticut DDC/DDS Awarded National Grant

 The Connecticut  Council on Developmental Disabilities in partnership with the Connecticut Department of Developmental Services (DDS ) were  one of five state teams  to receive a national grant to participate in a five year Community of Practice study. Connecticut’s Council on Developmental Disabilities and DDS will focus on creating a learning environment for intense exploration into policy, practices, trends and barriers for individuals with intellectual disability. For details click here.

Take a Survey to Give a Voice to Persons with Disabilities in Disaster Situations

Dear Colleagues;

Marcie Roth, Director of FEMA’s Office of Disability Integration and Coordination, [formerly of Connecticut] would like to make sure your voice is heard by sharing the survey from the United Nations Office for Disaster Risk Reduction (UNISDR) on Living with Disabilities and Disasters.   UNISDR is conducting this survey to ascertain the needs of persons living with disabilities and disasters.  Please take a moment to visit the link below and complete the survey; as well as forwarding to all you know would benefit by participating in the United Nations’ request for information.


Click here to take the survey: http://www.surveymonkey.com/s/XJFJD96

Consumer Involvement Fund (CIF) CT Council on Developmental Disabilities

Do you know that there is partial funding available for Connecticut individuals with developmental disabilities and their family members to participate in conferences, attend legislative advocacy skills events, go to public forums and hearings? The CIF can fund partial of the cost  of registration, child and respite care, personal assistance, hotel/lodging, meals, transportation and other related expenses at the discretion of the Council. Individuals may receive up to $100 to attend an event in-state and up to $600 to attend an event out of state. Individuals must provide 25% in matching funds from another organization or agency or personally. Click here for application and reporting packet.

Woman With Down Syndrome Prevails In Guardianship Dispute

From Disability Scoop By Michelle Diament August 5, 2013

In a closely-watched case centering on the rights of adults with disabilities, a Virginia woman has won the right to live with her friends rather than in a group home as her parents preferred.  Margaret “Jenny” Hatch, 29, who has Down syndrome, has been fighting for a year to live with her friends, Jim Talbert and Kelly Morris. Hatch previously lived with the couple, but more recently she has been living in a series of group homes against her wishes while under the temporary guardianship of her mother and stepfather.  On Friday, Newport News, Va. Circuit Court Judge David F. Pugh determined that Hatch needed the protection of a guardian, but said he had to take the young woman’s wishes into account. Accordingly, Pugh granted temporary guardianship for one year to Talbert and Morris, reports the Newport News Daily Press. During that time, the couple is to help Hatch become more independent.  “Free at last,” the newspaper reports that Hatch said after the ruling, which paved the way for her to move back in with Talbert and Morris. “I’m going home. I’m so happy to be going home today.”  Hatch’s mother, Julia Ross, was reportedly fighting back tears as she left the courtroom.

Advocates hailed the ruling as a victory for adults with disabilities.

“Like most people with developmental disabilities — and just like all of us — Jenny will learn, grow, and live best when she has the freedom and responsibility to make her own decisions,” Susan Mizner, disability counsel for the American Civil Liberties Union, said in a statement. “Disability is no excuse to deprive someone of her basic civil liberties, and we are thrilled that Jenny will get some control of her life back.”

Department of Justice Settles ADA Complaint Against the XL Center

Connecticut’s own Attorney Michelle Duprey filed a complaint with the Department of Justice against the XL Center after attending a Bruce Springsteen concert in 2009 where she encountered numerous barriers ranging from line of sight problems to inaccessible rest room facilities. The settlement agreement was announced in early July. Click to see the Connecticut Law Tribune’s article http://www.ctlawtribune.com/PubArticleCT.jsp?id=1202609698432&ADA_Attorneys_Complaint_Rocks_XL_Center&slreturn=20130609133150.


Legislative Update

Beth Leslie, Legislative and Regulations Specialist at the State Office of Protection and Advocacy for Persons with Disabilities has completed a comprehensive report of all legislation that was passed during the 2013 Legislative Session which could impact individuals with disabilities and their family members. It includes everything from legislation on Handicapped Parking, to new laws for people with intellectual disabilities to voting rights and more. All Connecticut advocates should become familiar with these new laws. For a copy of the report click here. Thanks Beth!

Emergency Preparedness for People with Disabilities

People with disabilities in Connecticut experienced many challenges before, during and after Storms Irene and Alfred in 2011. In response to these challenges, the CT Council on Developmental Disabilities developed a printed and electronic brochure to assist people with disabilities in planning for their emergencies. Feel free to share these electronic and printed brochures with your friends or post them on list-sevs and any social media application(s). Click here to see the online brochure or here to see the print version.


On December 6, 2012, the FCC Chairman announced that the four major wireless carriers – AT&T, Verizon, Sprint, T-Mobile – have agreed to accelerate the availability of text-to-911, with major deployments expected in 2013 and a commitment to nationwide availability by May 15, 2014.   Text-to-911 will provide consumers, including millions of consumers with hearing and speech disabilities, access to emergency services by enabling them to send a text message to 911.  Below are the links to the announcement:








You are invited to attend a Council Meeting and to learn more about us. Please click here to find the schedule.



Virgin Atlantic Airline has a travel chair for children with disabilities aged 3-11 years. You can request it free of charge when you book.  HAPPY TRAVELING!







Field Notes is a monthly newsletter published by the National Association of Councils on Developmental Disabilities.  The newsletter is published on the third Thursday of each month and the link to each newsletter  will be posted on our website. Each issue will focus on a specific topic related to people with disabilities.   Below are the links for the November and December, February, and March issues of Field Notes.  Watch for the link to future editions as they are published!